Name: The Politics Of Sickle Cell And Thalassaemia von Elizabeth Anionwu
SKU: 9780335196074
Price: 26.00 CHF
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The Politics Of Sickle Cell And Thalassaemia Zusammenfassung

The Politics Of Sickle Cell And Thalassaemia Elizabeth Anionwu

"...a most interesting, eye-opening and often challenging book...it should be read by anyone involved in dealing with haemoglobinopathies, in the health or social care setting. Many others who are interested in the broader issues around chronic and particularly genetic disease will also find it stimulating reading." - Dr Anne Yardumian, Consultant Haematologist, North Middlesex Hospital, London

"Overall this book acts as an invaluable introduction, acting as a template for considering chronic and genetic disease, and with its comprehensive bibliography should be a natural springboard for any practitioner wanting to develop their knowledge in this subject area." - Journal of Biosocial Science

Sickle cell disorders and thalassaemia are inherited blood disorders. Sickle cell disorder alters the shape of the red blood cells from their usual round appearance to something which resembles a sickle, or half moon. Those born with thalassaemia major are unable to make a sufficient amount of haemoglobin. They will develop a fatal anaemia in early childhood if not treated with blood transfusion every four to six weeks, for life. Sickle cell disorders and thalassaemia are found mainly in families that come from Africa, South Asia, the Caribbean, the Eastern Mediterranean and the Middle East. There are estimated to be over 10,000 people with a sickle cell disorder (SCD) and around 600 cases of thalassaemia in the UK. Despite this high incidence, it is still an under researched topic, and a subject about which health professionals and policy makers know very little. After years of neglect, it is now attracting policy interest and there are new moves to improve existing provision.

This timely book examines the politics of sickle cell and thalassaemia and offers a detailed evaluation of the services available. It is unusual in placing patients and their families at the centre of the study, allowing their views to be heard, and relating them to the delivery and organization of services. The problems that emerge range from inadequate language support, inappropriate generalizations, poor quality care, as well as institutional and individual racism. The book also identifies models of good practice and suggests ways in which we can learn from these. General policy and practice issues are highlighted throughout, and the need for a more systematic approach to planning and providing culturally sensitive services is addressed.

The Politics Of Sickle Cell And Thalassaemia Bewertungen

I would recommend this book to any midwife; it is immediately relevant to planners of maternity services, those involved in antenatal screening and testing and anyone caring for families affected by these conditions. Midwifery Digest

Über Elizabeth Anionwu

Elizabeth N. Anionwu is Professor of Nursing and Head of the Mary Seacole Centre for Nursing Practice at Thames Valley University. In 1979 she became the first sickle and thalassaemia counsellor to be appointed in Britain and was Head of the Brent Centre from 1979 to 1990. Elizabeth N. Anionwu has published extensively about sickle and thalassaemia disorders and organised numerous courses for health professionals within the UK and overseas.

Karl Atkin is Senior Lecturer at the Centre for Research in Primary Care, University of Leeds. He has published on the experience of carers, the organisation of primary care and the provision of support to people from different minority ethnic groups. He is co-editor (with Waqar Ahmad) of 'Race' and Community Care (Open University Press) and is co-author (with Julia Twigg) of Carers Perceived: Policy and Practice in Informal Care (Open University Press).

Inhaltsverzeichnis

The politics of sickle cell disorders and thalassaemia
Origins, geographic distribution, genetics and laboratory investigations
Clinical features and management
Genetic screening and counselling
ethics, politics and practice
The experience of sickle cell and thalassaemia
Health and social care provision
Past achievements and future strategies
Bibliography
Index.

Zusätzliche Informationen

Sku

GOR004289484

ISBN 13

9780335196074

ISBN 10

0335196071

Titel

The Politics Of Sickle Cell And Thalassaemia Elizabeth Anionwu

Autor

Elizabeth Anionwu

Zustand

Gebraucht - Sehr Gut

Bindung

Broschiert

Verlag

Open University Press

Datum

2001-06-16

Anzahl der Seiten

176

Preise

N/A

Begleitschreiben

Die Abbildung des Buches dient nur Illustrationszwecken, die tatsächliche Bindung, das Cover und die Auflage können sich davon unterscheiden.

Hinweis

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