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Community Genetics and Genetic Alliances Aviad E. Raz

Community Genetics and Genetic Alliances By Aviad E. Raz

Community Genetics and Genetic Alliances by Aviad E. Raz


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Community Genetics and Genetic Alliances Summary

Community Genetics and Genetic Alliances: Eugenics, Carrier Testing, and Networks of Risk by Aviad E. Raz

Carrier testing of adults provides information about the risk of passing a genetic mutation to your children, leading to reproductive (and some say, eugenic) decisions. Excessive carrier screening may have adverse effects, but it can also prevent suffering and open up new reproductive options. Raz's study focuses on the interplay of community genetics (the medical organisation of carrier screening) and genetic alliances (networks of individuals at risk), exploring how 'genetic communities' are emerging both within existing ethnic groups and around patients' organizations.

While the interplay between carrier testing, reproduction and eugenics has sparked many discussions, this study provides a novel and much-needed perspective on its actual implementation and interpretation by community members. Conflating a cross-cultural spectrum of genetic communities, the benefits and perils of supporting (or restricting) carrier screening are located within broader social issues such as religion, ethnicity, multi-culturalism, abortion, stigmatization, suffering and care-giving. While carrier screening emerges as ultimately a morally justified pronatalist endeavour for the reduction of suffering, thus being different in principle from the 'old' eugenics, it can also carry unintended adverse consequences if left unattended to consumers, communities, or health professionals.

Community Genetics and Genetic Alliances Reviews

'Using opportunities to reduce suffering is a laudable intention, whatever it is called. The road to hell, however, is paved with good intentions too. Thanks heaven critics like Aviad Raz keep us alert by pointing out unwanted side effects. A warned human counts for two.'.....Leo P ten Kate, Professor Emeritus of Clinical Genetics, VU University Medical Center, Amsterdam, The Netherlands

'Everyone confronting the social, cultural and ethical aspects of this field should reflect carefully on what this book has to say. It is an original, empirically informed and invaluable addition to the literature'..... Ruth Chadwick, Director of the ESRC Centre for Economic and Social Aspects of Genomics, Cardiff University, UK


'Using opportunities to reduce suffering is a laudable intention, whatever it is called. The road to hell, however, is paved with good intentions too. Thanks heaven critics like Aviad Raz keep us alert by pointing out unwanted side effects. A warned human counts for two.' - Leo P ten Kate, Professor Emeritus of Clinical Genetics, VU University Medical Center, Amsterdam, The Netherlands

'Everyone confronting the social, cultural and ethical aspects of this field should reflect carefully on what this book has to say. It is an original, empirically informed and invaluable addition to the literature' - Ruth Chadwick, Director of the ESRC Centre for Economic and Social Aspects of Genomics, Cardiff University, UK

About Aviad E. Raz

Aviad E. Raz is Professor of Organizational and Medical Sociology, Ben-Gurion University of the Negev, Beer-Sheva, Israel, where he is also directing the Behavioural Sciences Program. He has published on the subject of organisational culture, as well as on the social and bioethical aspects of health organisations, especially in the context of community genetics.

Table of Contents

Introduction: Carrier Testing, Eugenics, and Networks of Risk 1. What is Community Genetics? Definitions and Debates 2. Carrier Matching and Collective Socialisation: Dor Yesharim and the Reinforcement of Stigma 3. Reproductive Carrier Testing Between Orthodoxy and Change 4. The Medicalisation of Cousin Marriage: Carrier Testing in a Muslim Community 5. Genetic Alliances: The Dilemma of Care and Prevention 6. Scientific, Communal and Lay Interpretations and Communicative Gaps Regarding Carrier Testing Conclusion: In Search of Moral Models

Additional information

NLS9780415534123
9780415534123
0415534127
Community Genetics and Genetic Alliances: Eugenics, Carrier Testing, and Networks of Risk by Aviad E. Raz
New
Paperback
Taylor & Francis Ltd
2012-02-21
208
N/A
Book picture is for illustrative purposes only, actual binding, cover or edition may vary.
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Customer Reviews - Community Genetics and Genetic Alliances