Through the voices of persons with neurodegenerative movement disorders, their family caregivers and neurologists, Browner and Preloran bring to life the meaning of neurogenetic diagnoses and how genetic information is understood. Timely, relevant, and accessible, this book will appeal to both academic and lay audiences.
...[a] superbly insightful work... - Linda Furlini, McGill University, Transcultural Psychiatry
'This small book provides a very comprehensive picture of the complexities of neurogenetic disease...the authors' use of case histories drives home the idea that disease experience is unique and family-based. Neurogenetic diagnoses: The power of hope, and the limits of today's medicine is a valuable resource for all genetic counselors, physicians, and other health professionals who are involved with people confronting these diseases. The book would also serve as a powerful tool for ethicists and policy makers thinking about the future of genetic testing and medicine. - Jill S. Goldman, Columbia University, Journal of Genetic Counseling
We would recommend this book as an illuminating account of patients' caregivers' and clinicians' experiences. It is a particularly sensitive and rich account of an under-researched area and it is refreshing to read that the study challenged many ideas the authors previously held about what would be important to participants. - Karen Forrest Keenan and Deidre Cillers, Human Genetics
Neurogenetic Diagnoses is a captivating book...It is impossible not to be moved by [the authors] evocative descriptions of the 'everyday burdens of living with neurodegenerative disease'... Neurogenetic Diagnoses is a text I am certain I will be referring to again and again. - Martyn Pickersgill, University of Edinburgh, New Genetics and Society
insightful and thorough examination of reactions to genetic testing - Jane S. Paulson et al., Progress in Neurobiology
Neurogenetic Diagnoses is a rare example of work that examines the intersection of genetics and the neurosciences (in this case clinical neurology)....The dual focus of Neurogenetic Diagnoses on neurology and genetics... makes it very well positioned to develop insights on the changing dynamics of what it means to be a neurological patient in the emerging era of genetic and genomic medicine.... - Fadhila Maazanderani, Edinburgh University, Science as Culture